Rare Diseases Advisory Group - London, United Kingdom - NHS England

NHS England
NHS England
Verified Company
London, United Kingdom

4 weeks ago

Tom O´Connor

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Tom O´Connor

beBee Recruiter
Description

RDAG makes recommendations to NHS England and the devolved administration of NHS Scotland, NHS Wales and NHS Northern Ireland on developing and implementing the strategy for rare diseases and highly specialised services.


Highly specialised services are provided to a smaller number of patients compared to specialised services; usually no more than 500 patients per year.

For this reason they are typically best delivered nationally through a very small number of centres of excellence.

Examples of highly specialised services include liver transplant services, enzyme replacement therapy and proton beam therapy for specific cancer treatments.


RDAG also has a broader role in implementing the UK Rare Disease Framework and links with the DHSC-led England Rare Diseases Framework Delivery Group in delivering the England Rare Diseases Action Plan.

NHS England reports to this Delivery Group on its progress against the action in the Plan, with RDAG advising on how the actions should be implemented.


As Chair you will provide leadership and work alongside other members of RDAG, holding responsibility for developing recommendations on national clinical priorities.

You will be part of the patient or carer constituency of NHS England. You will also be responsible for facilitating effective contribution of lay members and patient and public representatives.

Invite to interview from 3 rd April


Interviews: 19 th April

The Chair is expected to demonstrate the highest standards of integrity and commitment, adhere to the values enshrined in the NHS Constitution and display the behaviours embodied in Our People Promise

  • The Chair will be required to provide strong leadership for the Group and ensure its effectiveness

They will need to:
Set the agenda for the Group and ensure the provision of timely communication to the members of the Group

  • Facilitate the effective contribution of patient and public representatives
  • Ensure effective decision making by the group and delivery of timely recommendations to CPAG.


The Chair is expected to have a high-level understanding and interest in healthcare issues, NHSE and the wider environment in which it operates.

The chair is expected to have the ability to inspire colleagues and demonstrate personal integrity and commitment to openness, inclusiveness and high standards.


Above all, the Chair is expected to provide strong leadership and regulate the Group, ensuring the Group functions with clarity, efficiency and effectiveness.


In April 2023, NHS England, NHS Digital, and Health Education England merged to create a new, single organisation to lead the NHS in England.

This new NHS England is designed to create a simpler, smaller, high performing, organisation that leads the NHS more effectively and is a better place to work.

Speaking with one voice to the service.

The new NHS England board have set out the top-level purpose for the new organisation to lead the NHS in England to deliver high-quality services for all, which will inform the detailed design work and we will achieve this purpose by:
Enabling local systems and providers to improve the health of their people and patients and reduce health inequalities.

Making the NHS a great place to work, where our people can make a difference and achieve their potential.

Working collaboratively to ensure our healthcare workforce has the right knowledge, skills, values and behaviours to deliver accessible, compassionate care

Optimising the use of digital technology, research, and innovation

Delivering value for money.


Colleagues with a contractual office base are expected to spend, on average, at least 40% of their time working in-person.

The Chair is expected to demonstrate the highest standards of integrity and commitment, adhere to the values enshrined in the NHS Constitution and display the behaviours embodied in Our People Promise

  • The Chair will be required to provide strong leadership for the Group and ensure its effectiveness

They will need to:
Set the agenda for the Group and ensure the provision of timely communication to the members of the Group

  • Facilitate the effective contribution of patient and public representatives
  • Ensure effective decision making by the group and delivery of timely recommendations to CPAG.


The Chair is expected to have a high-level understanding and interest in healthcare issues, NHSE and the wider environment in which it operates.

The chair is expected to have the ability to inspire colleagues and demonstrate personal integrity and commitment to openness, inclusiveness and high standards.


Above all, the Chair is expected to provide strong leadership and regulate the Group, ensuring the Group functions with clarity, efficiency and effectiveness.

The Chair must provide independent judgement and constructive challenge. The chair must facilitate the effective contribution of all members, ensuring all members engage positively and collaboratively in discussion. They will ensure that views a
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