- Excellent administrative and organisational skills with the ability to meet deadlines.
- Excellent IT skills including excel and power point.
- Excellent interpersonal and communication skills.
- Excellent time management and problem-solving skills.
- Ability to work with data sets.
- Ability to maintain adherence to written protocols and procedures.
- Evidence of teaching and presentation skills.
- Ability to manage projects and demonstrate leadership
- Write research protocols and submit grant applications.
- Educated to postgraduate MSc
- Experience of disseminating research findings.
- Experience of working with children and young people.
- Experience of working and interacting with research participants.
- Up to date Good Clinical Practice training.
- Experience of carrying out research in the NHS.
- Experience of working in paediatric and/or palliative care research
Research Fellow - Artington, United Kingdom - Shooting Star Children's Hospices
Description
Job summary
An excitingopportunity has arisen at the hospice for a research lead and data manager,this role will be split between time with the specialist team (SPACE) and thewider hospice teams. Research is at the core of the services that we offer, andthe successful applicant will work with the Research Governance group tocontinue to develop our research programme and with the clinical teams onservice development and data management projects.
Main duties of the job
Be a professional role model and research champion for theorganisation.
Lead andcoordinate research ensuring a research culture within the hospice.
Takeresponsibility and accountability for research studies.
Providespecialist advice to support and facilitate high quality research incollaboration with the research governance group and multi professional team.
Facilitatethe development of staff research knowledge and skills.
Providean innovative and progressive attitude to the continual improvement ofChild/Young Person (CYP) care through research and evidence-based practice.
Takeresponsibility for ensuring that any personal data used for research purposesis handled in line with the Data protection Act and its principles.
Work todeliver the hospice wide research strategy.
About us
Shooting Star Childrens Hospicesprovides specialist care and support to families who have a baby, child oryoung person with a life-limiting condition, or who have been bereaved. RatedOutstanding by the Care Quality Commission, we support families acrossSurrey, north-west London and south-west London from diagnosis to end of lifeand throughout bereavement with a range of nursing, practical, emotional andmedical care.
Our specialist care and support isfree of charge to families and available 24 hours a day, 365 days a year. Itincludes specialist nursing in the community, symptom management, overnightrespite stays, end-of-life care, specialist bereavement care and acomprehensive range of therapies, groups and clinics for the whole family.
At the heart of what we do are ourdedicated staff; their exceptional commitment and professionalism means everyfamily has the opportunity to make every moment count .
It costs £10 million a year to run ShootingStar Childrens Hospices. Just 30% of our funding comes from the government, sowe rely on our supporters generosity to keep the service running. We employ175 members of staff, including 98 nursing and medical staff, and support around700 families.
Job descriptionJob responsibilities
JOB DESCRIPTION
Job Title: Research Fellow / Data Manager
Team: Hospice CareTeam
Group: Care
Reports to: Nurse Consultant Paediatric Palliative Care
Hours: hours(Split between Specialist PalliAtive CarE (SPACE) team and Practice Educationteam) 3 days within the hospice, 2 days remote working
Level: Band 7£50, - £55, (geographical allowance included)
Location: Christophers, Guildford
Introduction to Shooting Star Childrens Hospices
Shooting Star Childrens Hospices
Shooting Star Childrens Hospices provides specialist careand support to families who have a baby, child or young person with alife-limiting condition, or who have been bereaved. Rated Outstanding by theCare Quality Commission, we support families across Surrey, north-west Londonand south-west London from diagnosis to end of life and throughout bereavementwith a range of nursing, practical, emotional and medical care.
Our specialist care and support is free of charge tofamilies and available 24 hours a day, 365 days a year. It includes specialistnursing in the community, symptom management, overnight respite stays,end-of-life care, specialist bereavement care and a comprehensive range oftherapies, groups and clinics for the whole family.
At the heart of what we do are our dedicated staff; theirexceptional commitment and professionalism means every family has theopportunity to make every moment count.
It costs £10 million a year to run Shooting Star ChildrensHospices. Just 30% of our funding comes from the government, so we rely on oursupporters generosity to keep the service running. We employ 175 members ofstaff, including 98 nursing and medical staff, and support around 700 families.
The Hospice Care Team
An exciting opportunity has arisen at the hospice for aresearch fellow to work with the specialist palliative care team and widerhospice teams at Shooting Star Childrens Hospices (SSCH). Research is at thecore of the services that we offer, and the successful applicant will berequired to work with the Research Governance group to continue to develop ourresearch programme, strategy and with the clinical teams service developmentand data management projects. This role is able to be offered as a hybridworking pattern with 3 days in the hospice and 2 days remote working.
Scope of the Role
Be aprofessional role model and research champion for the organisation.
Lead andcoordinate research ensuring a research culture within the hospice.
Takeresponsibility and accountability for research studies.
Providespecialist advice to support and facilitate high quality research incollaboration with the research governance group and multi professional team.
Facilitatethe development of staff research knowledge and skills.
Providean innovative and progressive attitude to the continual improvement ofChild/Young Person (CYP) care through research and evidence-based practice.
Takeresponsibility for ensuring that any personal data used for research purposesis handled in line with the Data protection Act and its principles.
Work todeliver the hospice wide research strategy.
Key Working relationships
Directorof Care
NurseConsultant
MedicalDirector / Consultant in Paediatric Palliative Medicine / Hospice GPs
Head ofHospice Services
Head ofFamily Support Team
PracticeEducation and Quality Team
ResearchGovernance Group
Trusteesfor Care
Hospicecare teams organisation wide
Safeguardingadults and children Team
MultidisciplinaryTeams
Children,Young People, their Families
Researchcolleagues from external settings
Main duties and responsibilities
Research :
To beresponsible for the day-to-day coordination and administration of researchprojects
Toparticipate in the design and preparation of research studies/trials, researchethic committee submissions, patient information sheets and other documentationensuring that these are reviewed and updated as required.
To carryout and assist in data collection (including qualitative interviewingtechniques) for research projects with CYP and/or their families.
Todesign and maintain databases (, using MACRO) and to use specialiststatistical packages as appropriate (, SPSS) for the analysis of researchdata in liaison and consultation with the research group.
Toprepare reports and presentations for review meetings and progress of researchprojects.
Tocomply with research study protocols, standard operational procedures andHospice / Trust policies related to data security, confidentiality and healthand safety.
Beinvolved with the financial processes associated with coordinating researchstudies and grant applications.
Topresent research findings in the form of published papers, reports,presentations, or summaries internally, nationally and internationally.
Act as aresource to staff and contribute to their professional and educationaldevelopment Act as expert resource for staff and researchers preparingsubmissions for regulatory approval.
Tosupport projects for the specialist service (3 days) and the wider hospice (2days).
Tosupport the development and compliance of research governance infrastructure inthe organisation.
Toensure the hospice can be a collaborative partner in national research projectsand engage meaningfully with the national paediatric palliative care researchagenda.
Reportany poor research processes that compromise patient safety and study protocols.
Toensure that all research is documented, and that all relevant documentation iscompleted accurately and within agreed timescales using Shooting StarChildrens Hospices approved documentation in line with NMC, CQC and ShootingStar Childrens Hospice standards.
To leadand take decisions on requests from externals teams for Shooting Star toparticipate within their research in consultation with the Research GovernanceGroup.
Service development:
Toparticipate in the parent involvement/research advisory group.
Toundertake presentations and teaching with multi-disciplinary staff to a varietyof audiences as required and lead journal club.
Toassist in the design and implementation of service development projects aspertinent to the role, following policies
Toundertake project management, including audit and service evaluation, withcolleagues within the care teams to help develop and improve services topatients and their families.
Toundertake evidence-based literature searches and reviews to assist the Careteams in implementing evidence-based practice.
To beactive in the research strategy, plan and lead stakeholder events.
Data management support for SPACE team:
Tocollect, analyse and present data for SPACE team (specialist paediatricpalliative care) which is based at SSCH.
To usecomputer-based applications excel, PowerPoint for entry, analysis andpresentation of data.
Tocreate quarterly reports of service data and present to relevant teams forservice monitoring and development and to the SSCH clinical governance group
Other :
Tomaintain up to date knowledge of legislation, national and local policies, andissues in relation to the role.
Takingpart in regular appraisal and maintaining an active engagement with currentdevelopments in the field of paediatric palliative care and relateddisciplines.
Toundertake relevant training on advanced communication skills and datacollection methods as required.
To planand organise own workload, including research, group, and individual work.
Contributeto monitoring of consent procedures.
Participatein local, regional, and national forums and networks related to clinicalresearch and the nurses role.
Ensurethat processes and procedures for ensuring participant confidentiality aredeveloped and adhered to in line with the Data Protection Act
Act asan ambassador for Shooting Star Childrens Hospices
Participatein events or publications that promote SSCH and childrens hospice/palliativecare.
Education :
Tofoster an environment conducive to learning, enquiry, and research
Act as aresource to staff, contributing to the professional and educational developmenttheir research knowledge and skills.
Maintainown professional development and mandatory training.
Professional :
Tomaintain confidentiality surrounding the child / young person and their familyat all times
Toundertake further training and academic qualification as relevant to the roleand service requirements
Person Specification
Education/Qualifications
Educated to postgraduate MSc - Essential
Experience
Experience of working with children and young people. - Desirable
Experience of working and interacting with research participants.-Desirable
Up to date Good Clinical Practice training. -Desirable
Experience of carrying out research in the NHS. -Desirable
Experience of working in paediatric and/or palliative careresearch -Desirable
Experience of disseminating research findings. -Essential
Skills Abilities/knowledge
Excellent administrative and organisational skills with theability to meet deadlines. - Essential
Excellent IT skills including excel and power point - Essential.
Excellent interpersonal and communication skills. -Essential
Excellent time management and problem-solving skills. - Essential
Ability to work with data sets. -Essential
Ability to maintain adherence to written protocols andprocedures. -Essential
Evidence of teaching and presentation skills. - Essential
Ability to manage projects and demonstrate leadership -Essential
Write research protocols and submit grant applications. -Desirable
Other Requirements
Flexibility to meet the needs of the service - Essential
Able to work across hospital and community settings to meetthe needs of the role. - Essential
Person SpecificationKnowledge and Skills
Essential
Desirable
Qualifications
Essential
Experience
Essential
Desirable