Over whelmed
After Hurricane Irma (my son, wife, grandchild & extended family are there), after the 3-buzz revolutions and revelations of Ali 🐝 Anani, Brand Ambassador @beBee recent buzz', I am spent. And it's 9/11
Let me be clear: I am NOBODY. And I don't want any uplifting here, I merely state the fact. I used to be somebody, but that life has gone. I have been on high-alert for 18 years, and it's taken it's toll. I'll come back to that.....
That's why I write. Mainly about Parkinson's and mainly not here. As you can see, I don't write often. Why? I don't have the time nor the energy. My life no longer belongs to me...I am 'Hurricane Harvey' personified....I just sit there, dumping.
There's two things I want to address here:
1. The shenanigans that have (to the greater part) been resolved. That is behemoth: nearly took Ali 🐝 Anani, Brand Ambassador @beBee away from us. If it weren't for the patience, knowledge, empathy and sober realization of others, he would've gone. Those are pivotal points in a platform such as this: maker or breaker. To-whit I thank so many: Ali 🐝 Anani, Brand Ambassador @beBee, Chris 🐝 Guest Cert.Prof.Acc.SA, Deb 🐝 Helfrich, Harvey Lloyd (especially), Deb🐝 Lange, Brand Ambassador @beBee, Cyndi wilkins, Harvey Lloyd, Susan 🐝 Rooks, the Grammar Goddess, Sara Jacobovici, Pascal Derrien, Cyndi wilkins, Devesh 🐝 Bhatt, Tausif Mundrawala, Lisa 🐝 Gallagher, Susan 🐝 Rooks, the Grammar Goddess, Deb🐝 Lange, Brand Ambassador @beBee and so many others I've not connected to yet. I salute your voice. We all needed it. We need to have a bit of a battle to establish good works - we are FLAWED, just in case anyone missed that point!
2. Personally, I am a 'floater'. I make nothing out of what I do here or on any other platform. I am involuntarily retired because my husband needs me as a full time care-giver/ carer (covers both sides). It is not a job that I take on with relish and sometimes I resent it. And often, we laugh at the ridiculous nature of him being a 224Ib giant to my iddy-biddy size. He's like a huge, unwielding sloth...that always gets the schlapplakker going! As my hubby pointed out the other day, for a year longer that HALVE our marriage, Parkinson's has been there, devolving/evolving...who cares. My hubby is deep into his disease and PD is a truly 'busy' disease....in the older days, starvation was one of the causes of death because they simply could control their bodies enough to eat. Nowadays, they live longer. Longer in misery - protracted suffering...whoopee! I know; my husband knows...when he breathes his last, it will be with relief.
''Poulin says more than 30 years of research shows that being a caregiver is among the most stressful, emotionally burdensome and physically demanding roles a person can take on. Spouses who are caregivers show decreased immune function, increased signs of physiological stress and are at greater risk for physical and mental illness.
below
"The problem is that when you're a caregiver, not all of your time is spent helping," says Poulin. "Sometimes all you can do is witness the person's state while being passively on duty."
below
https://www.sciencedaily.com/r eleases/2017/08/170828105407.htm
Yet his primary disease is 'unbridled optimism'. Go figure. See that a lot in male PwP (people with Parkinson's). He's lost his life and so have I. We exist. We try...every day. That's it.
The chance of being 'top of your game', 'successful'...whatever; is long gone. I care, but I'm not bitter. I am exhausted...so is he, as he hardly ever sleeps.
So when I come on here, it's because I need a life outside...I sure as sheeet don't want airy-fairie as much as I don't want egos rearing. You guys are doing just fine.......now. Keep it up...for me.

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Comments
Lisa Vanderburg
8 years ago#20
You are ADORABLE, ! Now I know why you're always ready with the bandaids :) Thanks dude!
Lisa Vanderburg
8 years ago#19
Oh, precious Joanne Gardocki...you got me laughing again! What a wonderful release-valve that is...I have the picture of you all in fits with your Ma's foot and stocking still poised....thank you; needed that!
Lisa Vanderburg
8 years ago#18
The pleasure is entirely mine lovely wholehearted man and friend Tausif Mundrawala. Thanks you for the share too!
Lisa Vanderburg
8 years ago#17
Dunno...they never used my name; too many kids. It was 'john...christo..nick..dian..marin..joann.....YOU!: come HERE!!'
Lisa Vanderburg
8 years ago#16
Lisa Vanderburg
8 years ago#15
Me and Pete (the hubby) often spend long moments of laughter. I kneel down to get his socks on and he says 'I can do it...' - that's all it takes because he's frozen. He just looks up a bit at me and then comes the schlapplakking :) Sometimes I'll just push him every so gently onto his bed; that gets him going too. Equally so as I wander 'round looking for my brain..... I am a tease....bad girl :)
Lisa Vanderburg
8 years ago#14
Lisa Vanderburg
8 years ago#13
dearest Deb \ud83d\udc1d Helfrich you are the indomitable voice of reason and rationale here; without your wisdom, this platform may well have failed. And that's the point: we all have to stand up to collectively steer the rules of engagement. Either that or blithely accept the losses. Like you, my friend, I can't stand by and watch a train wreak about to happen without at least shouting out the alarm. Your understanding or all the forces and scenarios will play out is admirable to say the least! Bless you, sweet woman!
Lisa Vanderburg
8 years ago#12
Lisa Vanderburg
8 years ago#11
Lance 🐝 Scoular
8 years ago#10
Lisa Gallagher
8 years ago#9
Ditto Ali \ud83d\udc1d Anani, Brand Ambassador @beBee, you are always a beacon of light. Much love and respect!
Harvey Lloyd
8 years ago#8
Lisa Gallagher
8 years ago#7
Lisa Vanderburg, you've given so much on this platform and you have so many people who admire and learn from you. Don't let a few sour people ever cause you to turn away. I appreciate you, my friend. Sending hugs, Lisa!!
Milos Djukic
8 years ago#6
Sara Jacobovici
8 years ago#5
Sara Jacobovici
8 years ago#4
Pascal Derrien
8 years ago#3
Devesh 🐝 Bhatt
8 years ago#2
Paul Walters
8 years ago#1